People can get really caught up in the way they experience the world.
It's really easy to only think about your life and the way you go through things,
how your body feels.
I know before I got sick, I never wondered how anybody else felt.
I never considered what it would be like to live in a brain, or a body,
that didn't cooperate with me.
And when I suddenly found myself in that position, it was pretty shocking to realize that other
people live like this, too.
But what's even more shocking to me was how difficult it was
to get healthy people to understand.
Even now when I go to social events, sometimes I'm surrounded by a bunch of healthy people,
and my body's screaming at me, something that I'm doing that's bothering it,
or making it not feel well.
And I look around during these times and I wonder, "What would that person do if they
could feel my body right now?"
This is an issue even in the disabled community.
It's difficult to think about conditions other than the ones you have.
You wanna raise awareness.
You wanna find cures and treatments for your condition
cause you would benefit greatly from them...
but the fact of the matter is, there's a lot more than just your one condition,
and if the disabled community focuses only on their conditions
then it just turns into cliques.
Instead of really trying to raise awareness for disability as a whole.
This past month, in May, was apparently an awareness month for a lot of conditions,
including EDS.
What did strike me was that there were a lot of conditions that I didn't know a lot about,
but I did learn about this month because it was their awareness month.
One of the things I like to do is research other conditions and learn about other people's
lives, and how they live with their health.
And what it would be like if I had been diagnosed with something else.
Because I still live with my mom,
sometimes I'll tell her about these new conditions I learn about.
She's always shocked that it's another thing the body can mess up and do wrong.
But the thing is there's a lot of ways that bodies can mess up, and it's easy to focus
on the only ways that I hear about.
My conditions.
But I don't want to contribute to that problem.
In hopes of raising awareness for more than just EDS,
I am starting a new video series
that is going to be called
the All Abilities Awareness series.
Starting June 1st, I will be posting a video on the first Friday of the month about a particular
condition that you might not know a lot about.
I'll only be making one video a month so I have a month to thoroughly research and understand
the scientific and medical ramifications.
But I'm gonna try to speak in layman's terms as much as possible.
So if you're able-bodied or don't know a lot about medicine, you can still follow along.
The point of doing this will be to raise awareness for some of these conditions, but also to
hopefully show the variance of ways that bodies can act and sometimes even misfunction.
I also think it's important to make sure that I don't get stuck in my own experience again.
Before I was sick, I didn't even realize that your body could be taken for granted,
that one day your body could betray you.
I don't wanna be stuck thinking about only my conditions.
So I'm hoping this series will help prevent that.
Please be sure to like this video and give it a big thumbs up,
and look out for the video coming up this next Friday
that will be about a chronic health condition.
If you have any condition suggestions you want me to do, or you would be willing to
let me interview you about a health condition you have, comment down below or direct message
me on one of my many social media profiles,
and subscribe to my channel if you'd like to see more videos.
Thank you for watching
and I will see you guys in the next video!
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