please don't judge a book by its cover
please understand that you know not all
illnesses are visible.
oh, and on a complete side note, if you are bored and
haven't had some spare time on your
hands and watch some TV totally
recommend watching 'Jane The Virgin', I have
have watched like a season and a half in
like a week and i'm not even ashamed
about because it's a really really
awesome programme, bit late to the game,
love it though
perfection... love it.... great actors
actresses. It's really awesome so totally
think you should go watch that
Hello Everybody, welcome back to my channel or if you are
new welcome to my channel and I hope you're well and I hope
you're all having a fantastic start to
the new year and I have some awesome awesome
exciting news
so if you want to hear that news stay
tuned to the end of the video to find
out what it is but, for this video I thought
I would talk about five things a chronic
illness sufferer would love you to know
and understand a bit more, so yeah
let's crack on with the video.
So the first thing on my list is grumpiness and
rudeness and short-tempered irritable
that kind of thing
now before you say anything because I
know you are in your head
we all have those days regardless of
whether we have a chronic illness like
if you think when you're tired or when
you are unwell you get a little bit
grump - de - grump. And I mean we get that too
too, but, our's is just obviously on a few more
days than any anyone else. And we
feel horrible about it i know i have
said some really horrible things to my
parents and my family and i really don't
mean to and I don't like it and I feel
bad and I don't think, 'oh I am unwell
I'm gonna get away with it
and I always do apologize and you
have to understand that i know people
said oh it is all very well being sorry
and stuff but
don't do it if it was that easy it would
be done
And number two is one that I
absolutely
oh I hate. I know when I was at school I
had this one girl who would consistently
consistently cancel on me every single time you made
arrangements and I just started to kind
of take it personally that it was like
something that I've done or something was wrong
with me and I want you to know if you're
the person that's being canceled on it
that we don't mean that at all sometimes
life just gets on top of us, our health
takes a bad turn
I'm someone who doesn't like planning too
far ahead for that reason I don't know
what my healths gonna be doing and I
absolutely hate the feeling it gives me
inside and I have to cancel on someone
I hat it soo much. I have found and this
could help you is just ask them to come
and chill with you or if you are the person
remember that although you feel bad
being cancelled on, that person also feels bad
and they start feeling lonely as well
because they can't just go out with
someone else
number 3 - fatigue and being very tired are
two very different things
fatigue is like a million times more
tired and it's like you just feel like
your body has the flu because you're
just so like your body is just
completely drained and it becomes achy
and sore and they're two very different
things so if someone says to you I'm like
I'm really fatigue you know I can't
do go out, they don't just mean ah I'm tired like,
I had a late night last night, like they're two
very very very different things number
four is something that I struggle with
myself daily and if I know it's hard for
other people to understand if you're not
in that position but I'm someone who is
very stubborn if you know me personally
you're on you will know I'm very open
and I am someone who tries to show
myself and others around me that just
because you have a chronic illness
doesn't mean you can't achieve things
you want to you might have to find a way
around it but you can achieve anything
that being said that are things that
sometimes are just not very accessible
for one reason or another and for me
personally it's things like going out
for a meal
I have a lot of problems with food and
eating and moving after food and for me
I just find going out to eat a meal very
uncomfortable. I know someone, she was the
first person I ever spoke to that had
gastroparesis and you know
other illnesses as well
but she was the first person that I ever spoke to and she has
had a lot it a lot worse than I have and she has spent a
lot of months in hospital you know restricted
to a bed and right now she's out there
and she's doing amazing with her swimming
and she is reaching goals and achieving
things swimming that she never thought
would be possible
a year ago, but she pushed herself and she
listened to her body so she didn't push herself too far but, it
became accessible but sometimes there
are things that just aren't gonna be you
know right
there'd been no good me going to a food
tasting thing because you know that's
so unaccessible for so many
reasons so please understand that
sometimes if a chronic illness sufferer says
no to something it could be tiredness, it
could just be that they find that very
unaccessible, but I know that I find hard
to admit that and i find it hard to say
it so I don't, I just they no - which I know is
isn't right
and it's the whole easier said than done thing
And last but not least, Number five is not all illnesses
are visible and i'm sure you've heard me
saying this a hundred thousand times if you have seen a lot of my videos
and it just kind of is what an invisible
illness is. It is an illness that you
can't see it is something going on inside the
body not outside. It's, you know, it's not a
a broken arm that you're in a cast, you are not
necessarily wheelchair-bound I'm sure
you've seen it floating around on the
internet i know i have various times but
it goes with people leaving notes on a
car you know windshield/ windscreen,
I don't know where I'm living these days
and I read one recently and I was hurt
and it wasn't even me that got the
letter. Basically a disabled woman and
her daughter parked in a disabled bay and
went into the shops or wherever it was
they went and what you couldn't see was
that that was a good thing to her and
she actually managed to walk around with
her daughter and she wasn't wheelchair bound
but what you didn't see is you know what
goes on behind the doors what goes on
yesterday what goes on tomorrow, what could
happen when she is halfway walking about
and someone left a note on her car
saying you know I hope you're enjoying
being in a disabled bay and you should be
ashamed of yourself and you know this
that and the other to me that's really
nasty and that's really hurtful because
you can't see what's going on inside
someone's body and you know she was
having a great day she was feeling
relatively ok and she comes back to that
and if you know it goes and in hand in
needing to raise awareness for these
conditions because people are so
judgmental and they just see what they
can physically see, they don't think about you know
what's going on inside
what's going on behind closed doors what
happened yesterday what happened why
what you that ... you don't see. SO...
understand that just because something
isn't visible doesn't make it any less
real than something that
is visibly there. You know having a broken
arm
you can't actually see that broken arm
you on know because there is a cast on it you
know it i find it so frustrating and
it's one of the reasons why i want to
help raise awareness because I i get i
know i get it so much because I do cheer, and
I work and yes I do push myself to do
those things because I want to do them
but like I said, what you don't see is how
I am after cheer, don't see how i am
after a day of work, or a week of work
you don't see you know what happened in
the middle of my day 20 minutes after you
saw me. I've had these
comments and it's hurtful seeing or knowing
others that have had these comments
because it's like you're telling us that
were lying and you don't believe us and
we have a hard enough time getting
doctors to believe us to get a diagnosis
we don't then need it from everyone else and
please don't turn around me and say oh
well you look fine, you must be fine
really....
can you see the you know what's going on
inside my stomach because if you can, you
have awesome vision!
somehow I don't think you can
so yeah... don't judge a book by it's cover
well that is all for this video I hope
you enjoyed it or learnt something or a
mixture of the two and if you did be
sure to give it a big thumbs up and in
order to raise more awareness
be sure to share the video or share
knowledge or research and then show
either or and if you are not already, please
be sure to hit that subscribe button
join my family we could have some more
fun and games and learn and experience
things together because this is the year
for us. AND for my exciting news for a
new year a new start i am now a CheerFit
Ambassador and you may be thinking
what does that mean basically i'm gonna
inspire you guys to be fit and enjoy
cheer or just you know exercising
conditioning in general. I'm going to be
sharing lots of fun exercise tips that I
like to do and conditioning and
stretches if you're a flyer or if you're just
gonna stretch because it is good for you and
yeah we're gonna have a ton of fun this
year we're going to be healthy and
exercise and yeah I thought it would be fun to
be an ambassador, so that is what I am for
this year woo woo. So if you have any exercise
that you love to do definately
be sure to let me know in the
description in the description
nope.. in the comments and just yeah
let's be healthy and exercise More because it is
so good for your body
you have no idea it's good for like
energy, motivation, mind set, your body so
yeah....
I'm going to be showing exercises
for everyone so they are kind of light
exercises that you can make harder or you can
have it easier if you are unable to
them hard, so watch out for those.
So, up over in that corner i'm gonna leave
the link to my last video and right down
there I'm gonna leave a link to one of my other
illness related videos that I've done so
we can learn more and more awareness so
click on them and until next time, keep
watching, Stay Strong and stay safe
Bye Guys xxxx
For more infomation >> Epic video - Duration: 1:57. 
For more infomation >> INDIE GIVEAWAY! GIOCHI / KEY IN REGALO! CONTEST STEAM! - Duration: 0:51. 
Không có nhận xét nào:
Đăng nhận xét