(reflective acoustic music)
- Back when I was 12, I was an athlete.
I played basketball and volleyball.
And I was fainting at practice.
It started to happen not during basketball.
It was happening all the time.
I couldn't keep it a secret anymore.
So then my Mom was concerned,
and she decided that we needed to go to the doctor.
I don't have a real diagnosis.
What I do know is that my heart has basically
two polar opposite arrhythmias.
When I was 16, I went in for an electrophysiology study.
In an electrophysiology study,
they kind of sedate you but not all the way under.
And they basically shoot adrenaline into your heart.
Basically they shot the adrenaline in
and my heart all but exploded.
They realized immediately that I needed to have
the pacemaker and defibrillator implanted.
That they weren't even going to wake me up.
It needed to happen
probably two minutes before
they put the adrenaline in.
- [Helene] When the doctor came out and said that
she needed a pacemaker, we
I didn't even know really what he was talking about.
He basically said there's just two types,
you need to pick one, and we need to get on
and do this surgery, and I just really had to
put my faith in his hands
that he knew what he was gonna do.
- So, it took a long time for me to figure out
who Michelle was going to be
after the surgeries.
It took a lot of tears, it took a lot of anger.
But when I did decide that I wasn't going to be
afraid anymore, that I wasn't going to kind of
be a victim to this,
things got significantly better.
I'm definitely a more optimistic person
and a more happy person because
days are limited, whether that means
in a very real, in your face type thing
where, who knows what's gonna happen with my heart
but, I don't think like that anymore,
I don't think if I move a certain way
or if I exercise too hard that I'm going to die,
but because I have had those thoughts in the past,
I'm able to enjoy that today's a really nice day.
- We met through some mutual friends.
And she just kind of commands a room.
Anybody who knows Michelle knows her personality
and the way she just kind of radiates
energy and excitement.
- Dustin kind of is a very go with the flow kind of guy.
He didn't know that I had any sort of medical quirks
until the first day my defibrillator went off,
when we were on a date.
- We were playing pickup basketball,
and she got shocked by her defibrillator.
She was going up for a rebound and then
she was laying on the ground.
And we loaded her up in the truck and she said
we need to go to the hospital,
and there were a million questions,
none that were appropriate to ask.
And we got her to the hospital and got that handled,
and then we read the opportunity
to have a long talk about it.
- And that's how I had to tell my Mom I had a boyfriend.
It was 'cause there was a boy calling my Mom
from the hospital.
Go Red for Women is important to me because
from the beginning of all of this,
it has been a conversation.
- Every year when it's Wear Red,
there's, if there's one text message,
there's 200 text messages of friends and family.
Red t-shirts,
her stepdad's really good about
that whole day anything that he sees that's red,
she gets a picture of.
It's a ketchup stain, it's a leaf on the ground,
it's anything that's red.
I think it's really given her a rallying point to
focus what could be such a
what could have been such a detrimental,
negative and helped make it positive.
- The doctors told me when I was 12 that
having children was not an option for me,
that my heart was never going to be healthy enough.
That my body wasn't ever going to be able to
handle this stress, and the pressure of carrying a child,
let alone the delivery.
- So we had a lot of conversations while we were dating
and engaged about what a family would look like
for us.
We kind of came to the conclusion that
adopting or surrogacy was kind of
probably the way we'd have to go,
and that was okay, it was.
We both had kinda found our peace with it.
- I have been off of all of my heart medication now
for over a year, after a lot of trial and error.
And because I have done that,
we were able to conceive our first child!
And we're able to have a natural birth
and we're going to be able to have our own little kiddo!
(positive music)
One of our biggest concerns was about this baby.
What are we subjecting this baby to
and just because I'm okay and we found
an okay place to be with it,
is it fair to sign up another person
for maybe a similar life?
But we've been assured that our baby is at
no higher risk than anybody else is.
But unfortunately, that risk is still pretty high
if it's a little girl.
That there will be heart disease in her world.
Statistics are one in three, is it?
And that's where events like this
kind of make all the difference in the world.
(positive music)
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